Wednesday, September 30, 2015

Surgeries Part 2



I took a break from writing about my surgeries to participate in the first annual #RABlog week last week.  It was an awesome experience and I met some amazing people who were also participating.  I just have to say, this world has some incredible people inhabiting it.

So, the last I wrote about my surgeries was finishing my first knee replacement surgery.  The doctor said if he had room in his surgery schedule the following Friday (my surgery was Tuesday), then we would do surgery on my other knee.  Friday came and I had done all of the usual surgery prep.  No food or water after midnight, they put a new IV in me, I was in a drafty hospital robe, and I was waiting, hoping that I could get in that day.  The doctor came in around 2:00 and told me that he was doing the best he could, but there just wouldn’t be room for me that day and would have to do the other surgery on the upcoming Tuesday.

I was disappointed, but there was nothing I could do.  I changed into my regular clothes, tried to eat some food (I had a lot of nausea going on from pain medications), and settled back in my bed for another four days. 

I had been getting regular visits from family, friends, and neighbors, and I was trying to take lots of naps, watched a lot of TV, tried to do anything to keep me occupied, but staying that long in the hospital made me stir crazy.  Technically, I could have gone home and come back on Tuesday, but it would have been difficult to explain to insurance why I was being admitted into the hospital again, so I just stayed the entire week until my next surgery.

I was still doing physical therapy every day, and it was getting a bit easier.  I was walking farther and farther each day, we practiced going up and down stairs, and he bent and straightened my knee until I screamed.  My mom had one of my nieces staying with her for a few days and she came along when my mom came to visit me.  I don’t know how she did it, but my mom seemed to always come during physical therapy, and it was at different times during the day.  I knew my little 3 year old niece wouldn’t like watching me scream out in pain, so I had to ask them to go look at the little newborns for a while until I was done with physical therapy.

The night before my second surgery came around, and my brother and a couple of his kids came to visit me.  My niece showed me a website that she has played around on called edheads.org.  It’s an educational website to help kids apply math, science, and critical thinking.  She showed me a virtual knee surgery activity that she had done.  It was quite a cute activity.  You choose the tools, make the incisions and cuts, perform the surgery, put the staples in, and finish the virtual knee surgery.  The PA came into my room to talk about the next day’s surgery right as we were finishing the activity and he watched the end of it.  At the end of the activity, it says something like, “Great job.  Are you sure this is your first total knee replacement?”  We all laughed!  Nope, it sure wasn’t my first total knee replacement!

Virtual Knee Replacement edheads.org

The next day, when I got into the operating room, I noticed and recognized many of the tools on the table that would be used in the surgery from the virtual knee replacement I did the night before.  The tools looked intimidating, but it was fun to recognize them and remember their functions.

The second surgery went about the same as the first.  I was nervous, trembling, crying, and hugging a nurse while the anesthesiologist put the needle in my back. 

I feel like the next few days in the hospital were about the same except now both knees were intensely painful.  I was nauseated, didn’t like the hospital food, physical therapy came and worked on both knees, I was woken up in the middle of the night…  The hospital dietician came and wanted me to drink high calorie drinks because I hadn’t eaten much during my stay.  Trying to gag down those drinks were awful while I was already nauseated.  I don’t think she had ever experienced major surgery and the nausea that accompanies all of the medications, hospital smells, food that doesn’t sound or taste very good.  I don’t think she would have eaten much either.

I was finally able to go home on the 4th of July after 10 full days in the hospital.  I was so ready to be home.  I could stay in my bed, in my clothes, eat food that sounded and tasted good, and get as much rest as possible.

One of the hardest things after knee surgery was getting enough sleep.  I’m naturally a side sleeper, but I had to keep my knees straight so they didn’t heal in a bent position and create scar tissue.  That’s what happened to my knees before surgery.  I couldn’t straighten them because scar tissue had built up and prevented them from straightening.  So I was sleeping on my back and I had Iceman machines and ice packs on my knees all day every day. 

I was doing my own physical therapy exercises at home.  It was hard to do, but it was much easier than having the physical therapist push and pull on my knees to stretch them.  I was taking pain medications all day to keep on top of the pain.  As I’m sure you know, opiate pain medications aren’t refillable and the doctor can’t call the prescription to the pharmacy.   You have to take a paper prescription each time.  I was starting to get low, so I called the surgeon’s office to see if I could get another prescription.  I called on a Wednesday and left a message with a medical assistant.  By Friday I hadn’t heard anything and I wasn’t going to have enough to get through the weekend.  I tried the doctor’s office again and left another message, but by the end of the business day I still hadn’t heard anything.

I started rationing my pain meds because I only had a couple of doses left and 3 days until my follow-up appointment with my surgeon when I knew I could get a written prescription.  Rationing probably wasn’t good, but I didn’t know what else to do.  My husband was calling all over to see if anybody had some pain meds.  He even called the doctor’s house and talked to his wife to see if anything could be done to get a prescription.  My dad was calling everyone he knew to find some.  I think he was even trying to find some druggies in town to buy some.  Despite everyone’s efforts, they couldn’t get any more pain killers for me and I ran out over the weekend.

Monday came and I went to the surgeon’s office to get staples taken out of the first knee.  They took staples out and then took x-rays of my knee.  The technician hung up the film and I saw for the first time, my implant in my knee.  The bright blocks of metal against my light outline of bones sparked something in my emotions and I began crying.  It was a depressing sight and I was thinking, why me?  Here I was, a 24 year old, and I had two knee replacements.  This kind of thing wasn’t normal.

The doctor was finally able to see me, and the first thing I said was that I had run out of meds and need another prescription.  We chatted about how things are looking.  He asked me to bend and straighten my knees as far as I could and requested that I do outpatient physical therapy.  We set up an appointment for the next week to get staples out of my other knee, and I walked down the ramp to physical therapy, which was in the same building.
   
I thought it was just going to be an evaluation and I would get some things to do at home.  Nope, they hooked me right up to the electrodes and started a full PT session.  I sent my husband to the pharmacist to get my pain killers because we all knew I would need them for PT.

This post is getting quite long.  I will continue with PT next time…

I’m sure I’m making this all sound like joint replacement and physical therapy are horrible awful things that should be avoided if at all possible.  That’s not what I’m intending to portray at all.  All of my surgeries have been wonderful at helping improve my quality of life.  I have heard many people say that they need joint replacement surgery but they are waiting until the pain is absolutely unbearable.  I believe that is a terrible idea.  I wish I would have started surgeries sooner than I did so I could have had a better year of life than I did.  I would encourage anyone thinking about it to schedule surgery now.  It may be a few months before your surgeon can schedule you in.  I’m not saying it’s not going to be extremely difficult and painful, but once you get through the first few months, it is awesome!!

Riley

Sunday, September 27, 2015

Final Day of #RABlog Week 2015



For the final day of #RABlog week, we are asked to mention some of the great blogs I have read.  This week has been eye-opening.  I have been introduced to some amazing people who write some amazing blogs.  I have met even more who didn’t participate in this week’s #RABlog week.  There are a lot of amazing RA bloggers out there and I’m honored to be a part of them. 

There was one particular post that struck me as very powerful.  It was regarding RA fatigue, and I want to share it with you.  http://thisnthatwrdub.blogspot.com/2015/09/tired-of-being-tired.html?m=1

Thank you Robyn for an amazing post.

Have an amazing week!

Riley